Thursday, June 27, 2013

It Was the Spring of Doctor Appointments

Earlier this year I was having problems with my salivary glands.  They were swollen and they hurt and I talked to the nurse at my endocrinologist's office, and then things seemed to get better.  And then they got worse again.

Sometime in May I realized that, now when my glands started to hurt, they were no longer swollen.  Which was actually too bad because when they were swollen the lemon drops and heat worked.  And now they no longer did.  More than that my mouth was so so so dry.  I was drinking a ton of water- especially when I was eating starchy or salty foods.  It was terribly uncomfortable.

I talked with my endocrinologist's office again.  This time, S. got me an appointment with a doctor in Shadyside who specializes in these issues.  Great, I thought.  This should take care of everything.  I've read online where people have had these problems, especially dry mouth, and they've been given medicine that stimulates their salivary glands and then life is much better after that.

The dry mouth in particular worried me.  I'm still in the process of getting an implant.  I've had three appointments- one in May and two in June.  First, they had to check my extraction site to make sure it was ok to do the implant.  Then, they had to do the implant.  then, two weeks later I had to go back to make sure that the implant looked ok.  I'll have to go back again in August to have the implant checked one more time, and then the same week I can go to my dentist's and get the crown.  Who knew it would take eight months to get an implant and crown?  Not to mention the two months prior of getting a root canal and then having it fail.  It's crazy.  This is my long way of saying I never want to fucking go through this again.  It's not painful so much as it just feels like it's taking up so much of my time, and time seems to be in short supply these days.  And I'm convinced that my salivary glands have not been working well for longer than I realized.  And that I think there is a very good chance that my salivary glands not working well and my dry mouth caused my tooth to go bad and sent me on this long, annoying journey of getting this goddamn implant.

Anyway.  I went to Dr. L.'s office two weeks ago.  He asked me a little bit about the problems I was experiencing, he asked when I had the radioactive iodine treatment, and he checked my salivary glands.  Then he told me that there was nothing he could or would do for me.

Apparently, 6-10 months post-rai is the peak time for patients to get dry mouth.  I was in month 10, and he was sure I was seeing the worst of it.  After that it should start to improve.  It can take up to three years, but he was pretty sure that things would return to normal, or almost normal, and at any rate I would be feeling better soon.  He said that there is medicine that he can prescribe, but the meds that stimulate your salivary glands also stimulate your sweat glands, and some people sweat a lot.  Like they're-guilty-of-something sweating.  And he didn't think that my glands were in such bad shape that I should need to resort to that.

In the meantime, fluids and Biotene.  Dr. L. recommends all the Biotene products, but S. seems to think the mouthwash is the only thing that works, so for right now that's all I have.  And, to be fair, my mouth has been feeling better this past week.  I still drink more when I'm eating.  But my mouth is feeling better between meals, and that's been a relief.

I've had two other routine exams this spring which went reasonably well.  And The Boy has had an appointment with an eye doctor- turns out he has eye alignment & tracking problems and it could be a reason he's having issues with reading, even though he's actually a pretty good reader.  So.  We're currently working on that with what amounts to physical therapy for his eyes.  My fingers are crossed that it works.  At any rate.  UPMC has made a nice chunk of change off my family this spring.  I feel like I'm far too young to have had this many doctor appointments within six months.  May I see less waiting rooms in the second half of this year.

Sunday, June 16, 2013

Anniversary


Actually, this is late.  I missed the anniversary.

One year ago from this past May 15, my thyroid came out.  It was full of cancer.  Good fucking riddance I say.

Why so late with a celebratory post?  I don't know.  We've been crazy busy.  I know, everyone is.  It's a terrible excuse.  But there you have it.  Some things fall by the wayside when life speeds up, and this blog, unfortunately, is one of them.  Not my choice you understand.  The family would protest though.  Plenty of other things are being neglected too.  Cleaning, mostly.  And other house projects.  Those keep piling up as well.

Anyway, the last year has slowly but steadily gotten better.  Some side effects from the radioactive iodine are still lingering though.  I'll go into that in another more detailed post before the end of the month.   Mainly, I'm still having some parotid gland issues.  Of course, it's way better than having cancer, but that doesn't mean that it's not a pain in the ass.  Because it is.

Still, I'm healthy and I'm here and I get to hang out with my family every day and that is honestly the absolute best.  School is out, the Boy couldn't be happier, and we have a very fun and busy summer ahead of us.  Awesomeness.

One last thing before I end this rambling post.  Last July I posted a picture of my scar online.  I had just started using Earth Mother Angel Baby balm on my thyroid surgery scar.  11 months later (and 13 months post surgery), the scar is significantly lighter.  I'm pretty pleased, and I honestly don't use the balm as often as I should.  They recommend 3-4 times a day.  I average once a day, sometimes twice.  It's good stuff.

July 2012



June 2013

Monday, June 10, 2013

Old Punks

'Oh.  Look at all the old punks with their young kids.  I guess we've got the Girl with us too.'

'You used to be punk rock, baby.'

'Now look at me.  In my SUV.  Wearing shorts from The Gap.'

                                                              ***

Bob Mould was at Hartwood Acres tonight.  There were lots of old punks there.  Looking older, with kids in tow, but many still rocking out in their black t-shirts.  There were some guys down by the stage taking pictures of each other, making sure to get Bob Mould in the background.  Since the Hartwood Acres concerts are free, there are a lot of people who just show up regardless of who's playing.  It's a nice way to spend a Sunday night in the summer.  After a few songs some of those people started to leave.  Bob Mould and his electric guitar- even without his band- get pretty damn loud.  It was their loss.  We didn't miss them, and plenty of us stayed behind to enjoy the show.  It was awesome.   

The highlight for me was dancing with the Girl to 'See a Little Light'.  When that song came out in 1989 I was in college.  I had no idea then, that over twenty years later, I'd be dancing along to that song in a field with my two year old daughter.